Friday, February 27, 2015

OUR JOURNEY CONTINUES( Day 4)


 OUR JOURNEY CONTINUES (Day 4)


I've been back in New York now for four weeks. While visiting mom I was sure to have paper and pen with me so I would be able to write down what I was feeling. There were days when I wrote nothing and days when my thoughts and emotions just overflowed as I scribbled away.

Today is the first day that I pulled out my notes, and for the next month or two, I will be documenting in sequence what I was feeling.

Day 4: I awoke today feeling good about mom yet when I reached the nursing home I started to feel a little queasy. After entering the facility and signing in, my husband and I took the elevator to the second floor.

It took a while to find mom, as usual, she was roaming the halls in her Merry Walker. Mom was clearly not having a great day. She appeared to be tired and most of what she had to say was about going home.

I heard mom "crying out" as if she hoped that we could help her. "Take me home my mother is waiting for me,"she pleaded . I need to go home and take care of my children." This was something that mom spoke about on many days.

Since this was in the beginning of our visits it really did upset me. I quickly learned to make the best of it and play along with her. On other visits when she mentioned that her mom was looking for her and I would say "Mom I spoke to your mom and she is okay." Mom would then look at me and with surprise in her voice, "you spoke to my mom?" "Yes mom, I did."

 I realized now why my mom never stops roaming the halls. She has made comments that she is almost home, and with each corner that she turns she seems to think that she'll find it. Her eyes wander into the different rooms as she keeps searching.

At these moments, when she is looking for her children, her memory takes her back to when my brother and I were infants. She cannot visualize us as grownups. When I share with her that I am her daughter she looks confused while at other times her face lights up and quickly tells me that she loves me.

I try not to focus on the sadness of this disease Most of the time I am able to stay in the moment and remain grateful that mom can still walk and talk. So for now I choose to be thankful for each day that we can still share together.


 
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Sunday, February 22, 2015

SHE MAKE ME SMILE, SHE MAKES ME LAUGH


SHE MAKES ME SMILE, SHE MAKES ME LAUGH.....

Mom knows how to melt my heart without even trying. It was not always like this, yet for the last ten years my unconditional love for her has grown to levels that I cannot explain. The most amazing thing is that I was given a second chance to love her completely.

Yes, she was always my mother, and I always loved her. I was just not in touch with how deeply I cared. It took her getting Alzheimer's for me to fall madly and completely in "awe" of her.

For four weeks my husband and I spent every day visiting mom in her nursing home. Since I live in New York my visits have consisted of just a couple of days every few months. Although each  December my husband and I would visit for a week this trip was different since we were able to spend some precious and meaningful time with her.

Since my return I miss mom even more and on most days I like to play some of the videos that I recorded. They keep me feeling like I am still with her. Just sending my love to her through the nurses is not nearly enough anymore.

These videos have me connected to her in a very different way. Being a long distant caregiver can be difficult. I have learned to accept the distance between us yet it does not make any of this easier.

We've been home for three weeks now and my brother just sent me a special message. He said "mom has been in really good moods recently and it is either from your visits or from her finally settling in (August was one year since mom entered the nursing home) or maybe both."

When I shared this with my husband we both smiled and said the same thing. We were sure that we made a difference in mom's life, and what is more amazing is that she did the same thing for us.

We both seem to feel a deeper inner peace, for me my heart has been glowing, not only for my mom, but also for the man I married thirty four years ago.

Please watch this precious and touching video. It is only 3 1/2 minutes long . I promise that it is both uplifting, inspiring and filled with love.

https://www.youtube.com/watch?v=v_TT_cOp3Hs&feature=youtu.be

Wednesday, February 11, 2015

MOM MY SWEET VALENTINE

 


 MOM MY SWEET VALENTINE

I've been back for two weeks now and as each day goes by the distance that lies between mom and I becomes greater. I am still feeling the joys of the "miraculous" time that I was able to spend with her, yet I really do miss her, and wish that I did not live so far away.

In some ways I was happier when I was able to see her each day. My brother calls once a week when he visits so mom and I can connect. With these calls I do get to hear her sing songs and tell me that she loves me. Still the presence of not being able to be with her leaves me feeling some sadness.

I often wonder how she is really doing. The nurses always reassure me that she is okay. Yet when I was with her I was able to be aware if anything was troubling her. It also was thrilling to experience the happiness we added to her day.

February 14th is Valentine's Day, a time when we tell someone how much we love them. Yes, my husband is my special Valentine, but he shares this day with someone else.

My other sweetheart that I cannot deny, is my mother. In many ways our roles have reversed yet I cannot forget all that she has given me.

So I'd like to dedicate this to My Valentine, My Mom:

Mom you were the one who brought me into this world and showed me the difference between right and wrong.

You were the one I leaned upon as you protected me.

When I was feeling sad you somehow brightened my day.

You were the one who cared for me and put up with my childish ways.

You were my best friend, my heart and soul even when I did not know.

You were one of my biggest fans and believed in me as I was finding my way.

When I was feeling insecure you were the one who taught me to believe in myself.

 And no matter whether you know my name or who I am, you will always be my mother.

Mom, I love and cherish you forever. You are truly my sweet Valentine.


 
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Wednesday, February 4, 2015

OUR "MAGICAL JOURNEY" RIDE

 

OUR "MAGICAL JOURNEY" RIDE

I have been trying to decide what I would like to share with you about my four week visit with my mom. I plan other blog entries about my visit, but thought my first entry should be about how I am feeling right now.

My spirit is feeling so light with an inner happiness I find hard to explain. I notice how upbeat I feel accompanied by a joyous glow. Being able to spend almost every day visiting mom was uplifting.

This was a trip that I planned  a year ago not knowing how much longer mom would be able to communicate with me. For the very first time (in the ten years that mom has Alzheimer's) I was not a long distant caregiver. I became her "daily"caregiver and, as if mom had a sixth sense, each day that I visited her, she became more and more responsive.

She appeared elated each day that my husband and I called her name as we found her wandering the hallways in her Merry Walker. I was so lucky to have my best friend, my husband, accompany me on every visit. Mom was so enamored with him, although she could not understand nor remember that he was her son- in- law for the last thirty-five years.

The two questions that everyone has asked of me since I returned home is "How is your mom doing?" and "Does your mom know you"? My answers have always been, " Mom is doing great and although she may not always say that I am her daughter I know that she knows who I am." Even when she did not seem to distinguish me, she then would suddenly call out my name Lees(short for Lisa) to come walk with her.

The other day my brother went to see her. He called me( back in NYC) and mom sounded so alive as she kept singing every song in the universe and telling me that she loved me. The very last thing mom said to me before we hung up the phone was "I never want anything to happen to you and I only want you to be happy. I love you and I will always be your mother."

My heart immediately skipped a beat and I knew how much our trip actually meant to her. I know that it really touched her and that my husband and I made a difference in her life.

I will never forget the time that I was able to spend with her and I will cherish it forever.For all of us this was truly "our magical journey ride", one that we all shared.



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Wednesday, December 10, 2014

SHARING OUR LOVE


SHARING OUR LOVE


We all have pictures of our families that fill our hearts with joy. Some are taken during special occasions and others are just celebrating being together. As I look at this photo it brings me back to  warm memories of when mom, my son and I were younger, enjoying a beautiful summer day at the lake.

It became a ritual for mom to leave Florida and visit for two weeks each summer. After she became ill the trips became more difficult being away from her own familiar setting.

Who would have imagined that one day mom would never be able to recognize who was in this picture. For her it is not just seeing who we are, it is also "knowing"who we are. Although we are her family she still cannot recognize us. Nor does she have any memories of these visits that she once looked so forward to.

Life certainly can be complicated yet understanding this disease truly amazes me. What makes Alzheimer's so powerful is that week by week it has crept into my mother's brain and removed what was once her life. It has stolen almost all of her memories leaving her with an empty existence.

I have accepted mom's fate and am grateful that most days I am able to appreciate what we still have left. In three weeks I will be visiting and spending one precious month with her. My heart is filled with mixed emotions; excited and nervous all at the very same time.

The clock is ticking and I have no idea how much longer mom will be able to recognize or even speak to me. As of now she is still mobile, yet she is totally dependent on her aides for everything else.

After ten long years of witnessing mom loose her independence, I also know that she certainly is one of the lucky ones. Her younger brother passed away rather quickly from this disease, so out of this I do not take anything for granted.

This trip is so meaningful for it may be my last time to spend some quality time with her before she totally fades away. Each moment, no matter how difficult some may be, I want to cherish whatever smiles, touches and kisses that I can get from her, and to return all the love I feel for her.

Hopefully with each of us spreading awareness about this disease, maybe one day, we will be able to celebrate living in a world free of Alzheimer's.



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Wednesday, November 19, 2014

GRATEFUL & THANKFUL


 

GRATEFUL & THANKFUL

Once again the holiday season is arriving and each year, especially during Thanksgiving, I like to reflect on the year as it comes to an end.

This year was an extremely joyous one for our son Logan became engaged to a very special young lady. My husband and I are doing wonderful and my brother and I continue to grow closer.  Mom turned 90 years old in August and is still able to speak and run around in her Merry Walker.

I posted two pictures (above) for as I reflect I realize how fortunate I was to have two loving and supportive parents. Although my dad passed away 20 years ago I know that I was lucky to have him for so many years.

Mom seems to be happy although most of her life's journey has all but disappeared. Alzheimer's has certainly robbed her of all memories, yet in a positive way it has also removed the negative ones that once caused her pain and heartache.

I'm thankful that my dad is not alive to be experiencing what is happening to her. I am grateful that she is still verbal as she shares words of love accompanied with a smiling face for the nurses; at the place we now call "home".

Her speech is more gibberish yet she still laughs and, at moments, surprises us with a sharp quick answer. Alzheimer's baffles me for somehow in her memory she still can spell and is able to sing the words to many songs.

I do not know how much longer mom will be able to sustain all that she now can do, certainly since she has this disease for over 10 years. So, with each day I remain grateful and thankful that however mom now is, we are still able to share our love with one another.





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Thursday, November 6, 2014

CONFESSIONS...15 MINUTES OF FEAR




CONFESSIONS....15 MINUTES OF FEAR



Could it be? Can I have the start of Alzheimer's? It is more likely that I can get it since it has stricken two of my family members (mom & her brother). My odds are greater than someone else whose family has never suffered from it.  It is hereditary although that does not mean that I will get the disease.

The thought occasionally crosses my mind when I cannot remember some movie that I saw, or a famous actor's name.  I try and concentrate till I recall the names and then I feel a sense of relief.

I do not walk around worrying about getting Alzheimer's, yet I am quicker to make a joke about it to excuse my momentarily lapse of memory. I have decided not to be tested to see if I have any Amyloid plaque buildup in my brain. I am really not that brave!

So, I must confess that today for about 15 minutes I could feel the anxiety, and panicked as I searched all over my apartment for a prescription that my drugstore said they had filled 15 days ago. Could I have been so forgetful that I had no recollection of this?

I called my husband to explain the situation and to hopefully calm me down. "The drugstore said they were sure that they delivered the drug to me on October 16th and here it is October 30th. If this is true wouldn't I have at least 15 pills left? Where could they be?"

I do have a great system, after I take a pill each morning I turn the bottle sideways in my medicine cabinet so I am sure that I took it. If this was the case I would be taking 2 pills a day for the last 2 weeks since no pills remained.

After my panic attack subsided and I was once again able to think clearly I called the drugstore back and with security said " I searched my home all over and do not have the pills." The pharmacist then said that I was correct, since they checked their records and it was never signed out or delivered to me.

As I took a deep long breath and cleared my head, my anxiousness subsided and I was able to feel "relief" that for "now" I was safe and free of this disease.




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Thursday, October 23, 2014

HOW IS YOUR MOM DOING?


HOW IS YOUR MOM DOING ?

This is mom 24 years ago. A lot has changed since then. My dad is deceased for 20 years and my son Logan is now 26 years old. Mom lives in a nursing home and we recently celebrated her 90th birthday. Except for Alzheimer's and macular degeneration she takes no medication and is in perfect health.

My family has lots to celebrate and be thankful for. There is one question that I frequently am asked which is "how is your mom doing?" I often answer,"my mom is doing good considering that she has Alzheimer's for the last ten years."

Several weeks ago I stopped to really think about how I just answered this question. My thoughts traveled to thinking about mom, a lady who has no idea about where she is living, or what she just ate.

She does not know that she should get dressed each day,and better yet. she does not have to wonder about what to wear.

She's doing good even if she is not aware of what day it is, the month, nor the year. She has no idea what  has transpired in the world. She has no fear of Ebola or terrorism.

She does not understand that her only grandchild has become engaged. In fact she does not really remember that she has a grandchild.

She no longer needs to think about what friend she might like to spend the day with, or what movie she would like to go see.  She no longer has to make any decisions on whether she'd like to take a walk in the park, stroll on the beach, or go to her favorite museum.

She does not remember that she was married for 50 years to my father, nor does not remember giving birth to her two children or, at moments,even that she has any.

Yes mom is doing good and she never has to decide on where she'd like to go on vacation or what country she'd like to travel to.  Life for her has certainly become "carefree".

So my answer to this question "how is your mom doing?" It will remain the same, for considering what is left in mom's world at least I can believe that she is happy. Happy for she is not aware of a world that exists outside of the four walls that she now resides in.

Mom has no understanding of how her life has been wiped away by such a horrible disease. So how is my mom doing? She'd doing good, and how am I doing? I'm also doing good, which is a conscious choice that I have made.

I can be happy or I can be sad. I choose to be happy. Happy that mom is not aware of what is happening to her.


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 Available as EBook, Audio Book & Paperback.
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Tuesday, October 21, 2014

Special Interview I'd Like to Share With You



This is a special 20 minute interview that I would like to share with you. It will also have you meet me(sort of in person). You have in some ways all become my family as I share my journey with you about my mom and our relationship.

Here is the link. Hope you enjoy it !

http://youtu.be/aTIP5NmOUog

Hugs to all,
Lisa

Wednesday, October 15, 2014

WHERE IS MY LITTLE GIRL ?



WHERE IS MY LITTLE GIRL?


One of mom's nurse's mentioned that when mom is lucid she will ask where I am and say that her daughter Lisa does not come to see her. She also says this of my brother (which makes me feel less guilty). Even if I had just visited mom she would not remember and would be repeating the same thing.

While I was speaking to the nurse mom happened to stroll by in her Merry Walker. The nurse put me on speaker phone so I was able to hear the conversation . "Ruthie how are you doing today?" Mom answered quickly that she was" good." "Would you like to speak to your daughter Lisa, who is now on the phone?" She answered "no not really I'm too sleepy," as she continued on her way.

The conversation made me giggle, yet it could not stop me from wondering, was mom really not wanting to speak to me or was she too tired? Did she really even understand that I was on the phone? Does she even know what a telephone is? She answered as if she understood, so why would she not want to speak to me? Luckily I did not feel slighted.

As Alzheimer's progresses mom's conversations have mostly disappeared. She can still speak and has moments where she is so sharp with her responses. Yet she is not able to concentrate enough to keep any conversation going because she cannot remember what someone just said.

I believe that there are moments when she is aware and wondering about everything, from where she is living to what is happening to her. Unfortunately her thoughts disappear so quickly that we can never know what she is thinking.

I miss mom terribly although I do get to watch her on videos that my brother recorded when I visited her. They have become so dear to my heart for they are the closest I have to being with her, even if my mom at moments is wondering where her little girl is .



MY MOM MY HERO. Follow our journey through the eyes of love. With over 175 Great Reviews. Available as EBook, Audio Book & Paperback.
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Thursday, October 2, 2014

A WORLD FREE OF ALZHEIMER'S



A WORLD FREE OF ALZHEIMER'S


I cannot imagine what it must be like to lose all of my life's memories and to no longer recognize my loved ones. How could I ever not remember my husband, giving birth to our son, his first day of school, my senior prom and all the other things that I have treasured in the world?

This is the very way that Alzheimer's invades ones soul. My family has been affected by this awful disease for quite a few years. My mom has it for ten years and her younger brother lost his life after three years of suffering from it. I often wonder why some family
members get Alzheimer's and others are spared?

For the last several months it has become more difficult being a long distance caregiver. A feeling of loss gradually started when I was no longer able to speak to mom on the phone each day. After she was moved into the nursing home she seemed more and more agitated and confused to be on the telephone. I decided that it was better not to disturb her and no longer asked the nurses to get her.

My brother had not been able to see mom for almost four weeks now. First he was ill and in the hospital, and then he left Florida for a two week planned vacation. I was not at all upset with him, I just felt troubled knowing that this was the situation. Who was now watching over our mother?

When I became aware of this I immediately phoned the head of nursing to ask her to please give mom an extra hug from me and to look after her. She replied that mom was doing really well, gained 2lbs. and that as usual she was busy running around in her Merry Walker.

Mom no longer realizes if the sun is shining or if the sky is dark and filled with clouds. She does not know if today is her birthday, or better yet mine. I know that my mom had no idea that she did not have any family visiting, yet I knew and I could not help feeling saddened because of it.

I sometimes feel as if mom is just locked away, locked away from life and from the world, as she lives somewhere inside her "own" private universe. Yes, mom is still alive it's just different now for all of us and I also must adjust as her disease progresses.

It's funny because my brother returned home yesterday and I awoke this morning realizing that last night I had a dream about her; Mom still had the disease yet she seemed content as she was surrounded by some friends. I cannot recall my dream specifically, yet I was left with a "magical" warm feeling. It was the first time in quite a while that I felt mom was safe again.

My next visit is not for twelve weeks yet this is a very special trip for I will be going to spend an entire month with her. It excites and frightens me all at the very same time.

As for now I just want to try and imagine a world one day free of this disease. Today this may be just a dream, yet one day a true reality. How wonderful it would be if all of our children and their children can live in a world free of Alzheimer's.





MY MOM MY HERO. Follow our journey through the eyes of love. With over 175 Great Reviews. Available as EBook, Audio Book & Paperback.
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