Thursday, March 26, 2015

MOMENTS TO TREASURE



 MOMENTS TO TREASURE

As I reflect back on the trip that I spent with mom I feel a sense of achievement. Maybe achievement is the incorrect word. It's more like I received a gift to have been able to share and spend so many special moments with her. Mom is quite different now, she has become an innocent sweet child filled with love.

Hearing her call me Lis (short for Lisa) touches me deeply. I now have such compassion for her as she searches all over for her mother. I have often said that as degrading as Alzheimer's disease is, there is also a "hidden silver lining". Mom has traveled back to a time when she felt safe, loved and protected. A place that will always be her home.

It's sweet to hear her speak of her deep love for her parents. She mentions her mother almost every day. When her mom passed away I was quite young. I then was able to witness how much she loved and respected her father. The grandfather I knew was a very special man whom I adored. To honor him I named my son after him.

One day during my visit mom was extremely tired and only wanted to go to sleep. When the aide and I put her down for a nap (hmm, like a baby) she did not want to fall asleep because she was concerned that her mother was waiting for her. I replied "mom it's okay she'll be here when you wake up." Mom whispered just before she closed her eyes "oh okay."

Later that day we spoke about my father which she rarely does. I'm not sure how much she remembers him. I want to believe that there are moments when she does think of him, before they quickly disappear and wash out to sea.

Before mom became ill some of the things she said would bother me. Not anymore, for now I treasure everything she expresses as if she has me in a trance.  I consider myself lucky to be able to smile and appreciate the things she says instead of feeling upset.

Being able to feel this way certainly opens my heart, and gives me much needed space to still be able to share with her whatever time we have left together.


MY MOM MY HERO book is for all the special people in our lives. Over 200 great reviews.

Available on Amazon , Kindle & Audio worldwide.

http://www.amazon.com/Mom-Hero-Alzheimers-A-daughters-bittersweet/dp/0615773982/ref=sr_1_1?ie=UTF8&qid=1389797650&sr=8-1&keywords=lisa+hirsch

Thursday, March 19, 2015

A PANG IN MY HEART


 A PANG IN MY HEART


After a lengthy visit with my mom I still feel a deep pang in my heart that will not easily go away. Not only do I miss her I also find myself thinking about her more often each day. Some of this might be attributed to finding out that someone else dear to my heart (at the age of seventy) also suffers from this disease.

His name is Rabbi Catano and he now lives in a nursing home close to where we live. This past weekend my husband and I went to visit him, which of course, brought up many thoughts and feelings about my own mother. I sometimes feel angry at this disease for it sweeps in without  warning and erases peoples' lives as if they never existed.

During my past visit with mom she spent most of her days speaking of or searching for her own mother. I noticed how our dear friend also repeated over and over about his grandmother and bringing her the newspaper. If I can find any "comfort" with Alzheimer's it would be that I believe that my mom and Rabbi Catano are not in any pain nor suffering.

I am left wondering that no matter how old you are, do you ever stop missing your parents? Could your feelings be wrapped up into your own mortality? My dad passed away twenty years ago and mom is still alive, although there certainly is a large part of her that is no longer here. Do I now in some ways consider myself an orphan?

Isn't a parent supposed to worry about you, think about you and want to take care of you no matter how old you are? What happened to my beliefs of what a parent should be like? Are they now all disguised due to an illness?

One thing that is left and comforts me is the thought that my mother, whether she expresses it or not, would only want wonderful things for me.Whether they are alive or not, or unable to fully express it, I must always remember how much love my dad and my mom had for me. In that way I was blessed my whole life to have parents who really did love me.

 
 
MY MOM MY HERO book is for all the special people in our lives. Over 200 great reviews.

Available on Amazon , Kindle & Audio worldwide.

http://www.amazon.com/Mom-Hero-Alzheimers-A-daughters-bittersweet/dp/0615773982/ref=sr_1_1?ie=UTF8&qid=1389797650&sr=8-1&keywords=lisa+hirsch

Wednesday, March 11, 2015

OUR JOURNEY MOVES ON (Day 7)


OUR JOURNEY MOVES ON (Day 7)

I just finished watching several videos from my visit with mom in January. I start each day watching  them which has now replaced the phone calls we use to share. They leave me feeling warm inside as if I am actually with her. How I love to hear her voice and see her smile.

Spending the last seven days with mom had me see how much more our roles have reversed. Mom has, in many ways, become a child; no longer knowing how to get dressed, brush her teeth, comb her hair or eat her meals.

On most days she does not even realize that I exist. She no longer worries or thinks about me as a mother would. For me I think of her constantly as if I were her mother wondering how she is doing.  Maybe she is feeling lonely, frightened or sad. I yearn to take her in my arms, cuddle her and protect her from the world. I want to reassure her that everything will be okay.

I cannot stop thinking, how much is she still aware of? What does she know or understand? We are now ten years into her Alzheimer's, yet there are parts of her that still are present. Mom can spell and is able to answer us in a quick witty manner. She'll tell me that her eyes are tearing or that her nose is running and ask if I have a tissue. She'll start to sing a song and fill in her own words as if she were a poet.

Then minutes later she'll ask for us to take her to her home. She'll say she wants to go home yet never questions where she is. She passes by others in the nursing home who are sitting in their wheelchairs as if they do not exist. Once is a while she says hello never questioning us who they are.

I wonder, where does she think she is? She has been here for 1 1/2 years. She is confused each day not knowing if I am her daughter or her friend. I've been married for 34 years and each day she wants to know who this man is.

I question why some people succumb to this disease and why mom in some ways after all these years still is "present". I ask, is she one of the luckier ones? Perhaps yes, although we as caregivers seem to suffer more as we watch our love ones fade away.

So mom, whether I'm walking beside you or miles away, I cannot stop my heart from missing you in more ways than one. I wish that you could truly understand this unconditional love that I now have for you . Only if you could!


MY MOM MY HERO book is for all the special Mom's in your lives. Over 200 great reviews.

Available on Amazon , Kindle & Audio worldwide.

http://www.amazon.com/Mom-Hero-Alzheimers-A-daughters-bittersweet/dp/0615773982/ref=sr_1_1?ie=UTF8&qid=1389797650&sr=8-1&keywords=lisa+hirsch